Spring

Hi There loyal readers. It's been a while since I posted but it is spring break so I have some time to add some pictures. Here is a picture of Jon in some new duds. He likes getting new clothes but sometimes they are a bit big on him. He is growing though so they will eventually fit.
We took these next two pictures on Easter. Maria was the only one who got dressed up though. Colin didn't come home from Calvin until later in the afternoon which is why he is only in the second picture with the snowman or hombre de la nieve we made.

This is Jon showing off his new orthotic brace and regular boy shoes. He was really excited to be able to wear athletic shoes just like everyone else and not his old black leather boots which had become quite worn out. This new brace articulates at the ankle and toe so that he can walk with a more natural gait. We are also having made an orthotic which he will wear at night to keep his foot and ankle tendons from tightening. The goal is to prevent as much foot drop as possible without having to use surgery or botox injections.
We are staying home this Spring break (like usual) which is good because Maria's health has not been good for several weeks now. She has had a cold for a while and a week ago we even took her into the emergency room because she was too weak to get out of bed and stand up. Fortunately she recovered enough during the day so that the doctor let her go home by dinner time, but we increased her mestanon dosage and the frequency of her IVIG infusions. This weekend she came down with strep throat which developed into pneumonia so she is on a strong antibiotic and nebulizer treatments. If her temperature doesn't come down to normal by tomorrow morning she will probably have to go back into the hospital for a steroid treatment and we don't want to do that, so if you read this pray for her to get better.
Love Dwight and Kathleen